Thanks Mark and Div, though you're too kind - I'm able to run and enjoy myself, so there's no reason that I shouldn't be helping out whilst I'm doing it trying to raise awareness (and some money) for many young girls who can't. It's something so many of us take for granted until we're faced with a situation where we realise that others aren't always as fortunate as ourselves. I was reading about the success with mice in the clinical trials last night, so hopefully as you say, it won't be long before there will be a proper cure for the conditions in humans, maybe in time to benefit Dionne. I'll post how I get on in the half marathon on Sunday - the charity vest won't be here in time for that, but I'll be running something else within a couple of weeks anyway, so will make sure I wear it at my remaining races this year. Either way I'll be running for the trust. Once I've got a couple of race photos of me wearing the vest at a race or two I'll post up a couple of pictures.
As I say, I'll be looking out to help in other ways in the future if I'm able to as well.